Senate District 16 – Meet the California Families Fighting for Injured Patients https://patientsforfairness.org 46 years is too long. Tue, 20 Dec 2022 17:19:48 +0000 en-US hourly 1 https://wordpress.org/?v=6.9.4 https://patientsforfairness.org/wp-content/uploads/2021/06/cropped-favicon-1-90x90.png Senate District 16 – Meet the California Families Fighting for Injured Patients https://patientsforfairness.org 32 32 Nina Hebert https://patientsforfairness.org/ninahebert/?utm_source=rss&utm_medium=rss&utm_campaign=ninahebert Sun, 02 Feb 2020 09:59:00 +0000 http://34.218.81.217/?p=1294 Nina's seizures are dismissed and left untreated for hours, putting her at risk of fatal internal bleeding and causing post-traumatic stress.

The post Nina Hebert appeared first on Meet the California Families Fighting for Injured Patients.]]>

 

 Share Nina’s Story
Facebook Share Button

Nina Hebert leads a busy career in addition to raising her three children. The Air Force recently relocated her family to California. 

She lives with long-term epilepsy and has learned to recognize her symptoms when they occur and knows how to manage her condition. One January afternoon, she began to have trouble speaking and lost mobility on her right side. She knew she was having seizures and headed to the hospital with her husband.  

An ambulance met them on their way, and emergency medics asked her about her symptoms. However, Nina could barely speak and was still in the midst of a seizure. Instead of recognizing her textbook symptoms of a partial focal seizure or listening to her husband’s explanation, the medics brushed off Nina’s symptoms and made comments insinuating that they thought Nina was under the influence of illicit drugs.  

By the time they arrived at the hospital, Nina was experiencing full-fledged grand mal seizures. She could not move or speak, but she could hear medical staff making jokes about her seizures and making fun of her husband. She waited for 45 minutes to have a CT scan, and was given no medication. Nurses came and went, playing down the situation. There was no urgency to read the scan or to get Nina treatment. No one called her neurologist. The doctor insisted that Nina simply had a migraine and gave her migraine medication. Medical staff continually asked her for a urine sample to test for illicit drugs but did not administer tests that would have provided insight about her condition.  

Nina knows from experience what is supposed to happen to treat seizures. The standard of care for treating is to administer Ativan, a seizure-specific medication, within 20 to 30 minutes of a seizure. But Nina waited for three long hours, going in and out of seizures, until she finally received medication. If the seizures had caused bleeding in her brain, it would not have been caught in time. The medical staff’s dismissal of her symptoms and failure to treat her promptly put her life in grave danger.  

By the time she received the proper medication, the dose was too low and so much time had passed that it was no longer useful. She was discharged from the hospital with a medical report that she later realized was missing multiple pages. She could not walk and had a significant amount of neck pain.  

Nina now lives with PTSD caused by the trauma of this experience. She never wants others to live through the nightmare that she did.  

Californians will have the chance to vote on the Fairness for Injured Patients Act on the November 2022 ballot. The Fairness Act would update California’s medical malpractice damage cap for nearly 50 years of inflation, and allow judges and juries to decide fair compensation in cases involving catastrophic injury or death.  Learn more about this campaign for patient safety.

Meet more patients

Visual Portfolio, Posts & Image Gallery for WordPress

Click the map to view stories by Senate District

A state law that hasn’t changed since 1975 caps compensation for families harmed by medical negligence. The limits apply to lost quality of life, even if a patient loses a leg, a child, or is disabled for life. Click on the picture of the map to find patients by the State Senate Districts they live in.

Paid for by Consumer Watchdog Campaign for the Fairness for Injured Patients Act
Committee Major Funding from:
Consumer Watchdog Campaign Nonprofit 501(c)(4)

The post Nina Hebert appeared first on Meet the California Families Fighting for Injured Patients.]]>
Anayeli Alvarez https://patientsforfairness.org/anayelialvarez/?utm_source=rss&utm_medium=rss&utm_campaign=anayelialvarez Fri, 17 Jan 2020 11:24:00 +0000 https://patientsforfairness.org/?p=18063 Anayeli will never walk or care for herself after her mother’s pregnancy complications were ignored. A law that hasn’t changed since 1975 means families whose child suffers lifelong harm cannot get justice. Her mother is fighting for change.

The post Anayeli Alvarez appeared first on Meet the California Families Fighting for Injured Patients.]]>

Selena Alvarez graduated from high school in 2013.  She was working and had just started attending college when she found out that she was pregnant.  She was studying to work in the medical field and was looking forward to starting her life.  It was her first pregnancy, and she was nervous but happy.  Everything was going well until she started to experience pain early in her pregnancy.  She quit school with the plan to take a break until she had her daughter and then go back.  Nothing went according to plan.

Everything seemed fine when Selena had her first OBGYN appointment at 10 weeks. But she quickly began to feel something was wrong – she was spotting blood and felt pain on her side.  Worried, she brought her concerns to her provider, but he downplayed her symptoms. She was sent home with no advice. Frightened and needing answers, Selena went to the local ER for help. But the local ER doctors passed her off too, telling her they were not OBs and sending her back to her OB-GYN. Over two months, Selena was caught in a cycle of neglect, as her condition grew worse to the point that she could not eat or sit up.  Yet the only time her provider ran labs or performed an ultrasound for Selena was at her first appointment.  Multiple visits to the OB and the hospital ended the same way – with no treatment and no answers.

By Christmas Eve, she could not feel her hands or her back and she could not breathe.  Although she was just 6 months pregnant, she was already dilated.  Selena went to the hospital, where her OB delivered her extremely premature baby. The whole time, the OB didn’t answer a single question from Selena or her husband about what was wrong, why the baby was so early, or the baby’s health once she was delivered. 

Selena’s daughter, who they named Anayeli, was delivered 23 weeks premature and weighed less than a pound.  Following her birth, they could not get a pulse or get the baby to breathe. It was left to another doctor to explain she would have to be airlifted to a children’s hospital over 200 miles away where they would have the resources to care for her. During a five-hour delay between Anayeli’s birth and the transfer, Selena’s mother and husband were not allowed into the NICU with her daughter, leaving no one to advocate for Anayeli and try to find answers. 

Selena was devastated.  This was her first child.  Selena’s mother told her, “This is wrong.  You needed help and no one helped you.  This could have been prevented.” 

It was not until Anayeli arrived at the children’s hospital that Selena learned that her baby girl had level 4 bleeding of the brain, the highest severity bleed, and hydrocephalus, a buildup of fluid in the brain.  They recommended that she cut life support but Selena refused to give up on her baby.  Anayeli was ultimately in the hospital for seven and a half months, and was diagnosed with epilepsy and cerebral palsy.  Selena herself was left with long-term conditions following her pregnancy complications including scoliosis, and a thyroid condition from bacteria that attacked her glands during pregnancy. 

Anayeli survived and is now seven years old, but she will never live independently.  She cannot walk and requires a feeding tube.  Selena is certain that if any of her concerns or symptoms had been taken seriously, Anayeli’s life would be very different. Instead, she will require 24/7 care for the rest of her life. 

Selena spent months looking for an attorney only for her daughter’s case to be turned down due to the 1975 medical negligence cap that limits quality of life damages to $250,000.  The nearly 50-year-old cap keeps children like Anayeli from getting the services and care they need.  Selena did find a lawyer to take Anayeli’s case for a short time, but he dropped the case when they no longer had the money to continue.  Selena struggles to get her daughter the physical therapy she needs, and tools like a wheelchair as she grows and requires more equipment.  Anayeli has Medi-Cal insurance, and it does not pay for some of the equipment that she needs for everyday life.  Selena pays for many things out of pocket which is a struggle since she can no longer work because her daughter requires 24-hour care.

Selena has faced many obstacles since her daughter was harmed by medical negligence including the breakup of her marriage.  She can no longer go to school or work because the majority of her time is spent in physical therapy and transporting her daughter from place to place.  Although Selena has struggled, she would not change a thing.  Her life has changed for the good.  Selena said “I was lost and Anayeli was the bright thing that came out of this.  I want to strive better and be better for my child.”  This is the reason why Selena has joined the fight for the Fairness Act to save another child from a life challenged by lifelong harm.

Californians will have the chance to vote on the Fairness for Injured Patients Act on the November 2022 ballot. The Fairness Act would update California’s medical malpractice damage cap for nearly 50 years of inflation, and allow judges and juries to decide fair compensation in cases involving catastrophic injury or death.  Learn more about this campaign for patient safety.

Meet more patients

Visual Portfolio, Posts & Image Gallery for WordPress

Screen Shot 2021-06-14 at 3.12.08 PM

Click the map to view stories by Senate District

A state law that hasn’t changed since 1975 caps compensation for families harmed by medical negligence. The limits apply to lost quality of life, even if a patient loses a leg, a child, or is disabled for life. Click on the picture of the map to find patients by the State Senate Districts they live in.

Paid for by Consumer Watchdog Campaign for the Fairness for Injured Patients Act
Committee Major Funding from:
Consumer Watchdog Campaign Nonprofit 501(c)(4)

The post Anayeli Alvarez appeared first on Meet the California Families Fighting for Injured Patients.]]>
Demi Dominguez https://patientsforfairness.org/demidominguez/?utm_source=rss&utm_medium=rss&utm_campaign=demidominguez Sat, 04 Jan 2020 10:03:00 +0000 http://34.218.81.217/?p=1301 Demi experiences common symptoms of the pregnancy complication eclampsia, but her concerns are dismissed by medical providers. Discharged from the hospital, Demi dies from a seizure at home.

The post Demi Dominguez appeared first on Meet the California Families Fighting for Injured Patients.]]>

 Share Demi’s Story
Facebook Share Button

Demi Dominguez was just about to graduate from Cal State Bakersfield with a bachelor’s degree in Psychology. Her plan was to go to graduate school to continue her studies in psychology and become a counselor. But her life was cut short by preventable medical negligence.

Education was so important to Demi.  She believed in helping others and she did so by mentoring many young people to seek higher education. She was already working as an Autism therapist with children at Easterseals Southern California in her quest to help others. Her future was bright.  

Demi was engaged in February 2019 to the love of her life, Xavier De Leon. She was in her senior year of college when she discovered that she was pregnant. Demi closely monitored her health throughout her pregnancy. Bringing Malakhi into the world was a new beginning for her family and she was excited to share that joy with her family and friends.

She was a caring, outgoing young woman who had her entire life ahead of her when tragedy struck. Demi never made it to her baby shower.

Demi wasn’t feeling well.  Feeling swollen and uncomfortable, she called her doctor to see if he could see her that day. She was told to wait for her next appointment but, concerned for her baby, Demi went to the local hospital. Upon arrival she was met by the doctor who would oversee her care for the next day or so. Demi told the doctor that her blood pressure was high, and she was experiencing extreme swelling. He made light of her concerns and blamed the swelling on eating Mexican food. He told her that “if she had eaten pizza she would blow up.” Demi knew something was wrong and was shocked to hear a doctor speak to her in that way, and that he showed no concern for her condition.

Demi had high blood pressure, blurry vision and other symptoms, and was told they were going to keep her overnight in the hospital for observation.  But for the 16 hours she was hospitalized, she never saw the doctor. She was released in the morning with a prescription and instructions to see her personal doctor within two days. She was never given a diagnosis.

When Demi went to see her regular doctor after she was discharged from the hospital, she was again sent home with no diagnosis. The following evening Demi went to sleep, had a seizure, and died in her fiancé’s arms.  

Preeclampsia is a condition that maternal health experts have identified as one of the leading causes of preventable maternal injury and death. Demi died of the seizures known as eclampsia, a worst-case development in preeclampsia cases. Demi exhibited all the signs of this well-known pregnancy risk, but her symptoms and concerns were ignored. Demi was just 23 years old. 

Demi’s mom and fiancé want to hold the hospital accountable for failing to prevent her death. But they soon found out about a 1975 law that caps survivor compensation when a mother dies at just $250,0000. Because of the cap, families often cannot find legal representation because it costs as much to bring a case as they could ever hope to recover.

They found an attorney, but only because they agreed to pay all of the costs out of pocket. It is more than Demi’s mom can afford, but she persists because Demi deserves justice, and because no other mother should suffer the same fate.   

Californians will have the chance to vote on the Fairness for Injured Patients Act on the November 2022 ballot. The Fairness Act would update California’s medical malpractice damage cap for nearly 50 years of inflation, and allow judges and juries to decide fair compensation in cases involving catastrophic injury or death.  Learn more about this campaign for patient safety.

Meet more patients

Visual Portfolio, Posts & Image Gallery for WordPress

Click the map to view stories by Senate District

A state law that hasn’t changed since 1975 caps compensation for families harmed by medical negligence. The limits apply to lost quality of life, even if a patient loses a leg, a child, or is disabled for life. Click on the picture of the map to find patients by the State Senate Districts they live in.

Paid for by Consumer Watchdog Campaign for the Fairness for Injured Patients Act
Committee Major Funding from:
Consumer Watchdog Campaign Nonprofit 501(c)(4)

The post Demi Dominguez appeared first on Meet the California Families Fighting for Injured Patients.]]>